From My Desk

Reflections on a Year without Jennifer

Reflections on a Year without Jennifer

It’s been quite a while since I’ve written in my blog. It’s also been a year unlike any other. Bear with me as this post might be a bit scattered!

When I set out to share Jennifer’s story, I had no idea the impact it would have on others. Since it launched, I have met or heard from many people from various walks of life. Many have watched a loved one go through a medically assisted death, and have reached out to me to thank me for sharing my family’s story. Of these people, most have not had anyone to discuss it with, as the topic is too taboo among friends or family. I have heard from those who witnessed a loved one die a protracted and painful death who wished physician assisted death was available where they reside, so that their loved one might have died peacefully and with dignity. Medical assistance in dying is growing in utilization, and I believe people need to talk about it openly in order to take away the stigma, and to give those who’ve watched a loved one die this way an opportunity to share their stories instead of keeping silent about their experiences.

Four and a half months after Jennifer’s death, we unexpectedly lost our dad to illness. Our family experienced grief layered upon grief and I have to admit, it wasn’t easy. For me, the eternal optimist, my spark gradually dimmed and my love for life faded in the months after Dad’s death, until I finally realized that depression had set in and it was time to do something about it. Thankfully, through counseling and medication, I am back to doing the things I love and feeling a lot better. I know I kind of glossed over that part, but the takeaway is, there is help for grief and depression and people ought to not be ashamed to ask for that help if they need it.

We laid Jennifer to rest in the family plot under a big oak tree on May 28th of this year. We were back there again on October 29th to bury Dad as well. Thankfully, both days were warm and sunny, and the memorial services were light and meaningful. Jennifer’s headstone has been laid – dark grey marble with purple veins in it, and a little turtle engraved on it. The design was approved by Jennifer before she passed. Dad’s stone will be laid in the spring. The graveyard is up on a hill, and is a very peaceful and pleasant place to visit, as cemeteries go.

As for grief, it is truly a weird duck. It sometimes comes in waves that feel overpowering, drowning you and then sometimes, in little ripples that bring a wry smile to your face. As I settled Jennifer’s estate, dealing with bankers and service providers, I could speak of Jennifer with a smile and at length about what she went through. I have done interviews about my book with the CBC, local news, not-so-local news and on podcasts in the US, and have stood before groups of people to tell the story, all without a hitch. Then, there are days when I walk into my office where I have a bookshelf of Jennifer’s pictures and knick knacks in view of my desk, and looking at them can bring a smile or tears, depending on the day. We didn’t really celebrate Christmas last year: my grief was still too raw to consider hosting a family event. This year, I fully looked forward to spending time with mom, my remaining sister, kids and grandkids with a heart fully of hope and joy. I missed that last year! In my office I keep a little turtle accent lamp that belonged to Jennifer and from Christmas Eve through Boxing Day, I left it on. A reminder that she is still in our hearts as we gather together.

Today, I fulfilled my pledge to support the Windsor Hospice with a donation from every print copy sold of Jennifer’s Choice. I did so by sending that donation to the Windsor-Essex VON, the nursing service that took care of Jennifer’s in-home hospice care under the direction of the Windsor Hospice. It just felt right to more directly support those who had cared for and supported Jennifer in the months prior to her death. I had the pleasure of meeting some of these nurses, and they were awesome people who took amazing care of my sister.

A new year is just around the corner, and it brings me hope of better days. It brings the inspiration to do more with my life and the time I have left. The past year has proven that one never knows when their time on earth will come to an end. I hope that as you consider the new year, that you might purpose to live your life meaningfully, work on your bucket list, and learn to be happy and be true to yourself. Happy New Year!

Jennifer’s Adventure to the Wave Gotik Treffen Festival

I wrote a while back about my sister Jennifer’s bucket list wish to go to the Wave Gotik Treffen music festival in Leipzig, Germany. I had hoped to find a kind soul to take her ashes with them for the festival, but I was informed that the laws in Germany surrounding the handling of human ashes are pretty strict. Uh oh!

Someone in the Facebook group I found for the festival mentioned that perhaps someone could take her picture to the festival with them, sort of like going on a posthumous adventure. And from that idea, three kindhearted people messaged me to say they would be honoured to take Jennifer to the festival with them.

We laid Jennifer to rest in the family plot on May 28th, and Wave Gotik Treffen was this past weekend in Germany. True to their word, Helmut, Peggy and Maureen all took Jennifer’s picture with them to the festival, shared her story with friends and strangers alike, and sent back many photos of Jennifer at the concerts, with the bands and with the costumed people attending the festival. I like to think that Jennifer had a wonderful time finally getting to ‘go’ to the festival that was on her bucket list.

If you’d like to see the photos from Jennifer’s adventure, please visit this page on her tribute website, www.jenniferellis.org.

To Helmut, Peggy and Maureen, I thank you from the bottom of my heart for your kindness in making this happen.

UPDATE: The story made it to the local paper. You can read about it here – https://www.sarniathisweek.com/news/local-news/petrolia-writer-makes-late-sisters-last-wishes-come-true

Birthday & Bereavement

Two very notable dates occurred this week.

My dad passed away on March 29th.

Today, April 1st, is my sister Jennifer’s birthday, the first one since she passed away last fall.

It’s been a challenging week, to say the least. Dad had been hospitalized for three weeks prior to his passing. He kept saying he was getting a little better day by day, and this past Sunday, he really thought that he had turned a corner and was on the mend. In retrospect, it was more likely an end-of-life surge or rally, where a patient feels much better for a few hours or a few days, only to very quickly decline and die.

Dad’s death came as a shock, as I think many in the family believed (or wanted to believe) that he was getting better. Sadder still was the fact that he declined so quickly that he passed away before we could get there to say our goodbyes.

I was supposed to give a talk about Jennifer’s cancer journey and her decision to use medical assistance in dying this weekend, (now obviously postponed), and while creating the Power Point presentation I was going to use for my talk, I found myself going through old photos of Jennifer and feeling the grief over her loss more deeply this week than I’ve felt for a little while. Then we lost Dad rather unexpectedly three days ago. I wrote here last summer, about the loss of a dear childhood friend. That is a lot of losses in a relatively short span of time and today, I remind myself to just breathe when the weight of it all seems too much.

I think there are always some regrets about not spending enough time with a person who’s now gone. I have found myself lost in thought frequently this week, reminiscing about my childhood; going trapping or fishing with Dad, hanging out in the garage, keeping him company while he skinned muskrats (not as gross as you might think), Dad teaching me to play guitar, working with him at the mill in my early adulthood, just remembering what a fun dad he was when we were little. Of course, that then brings back memories of my grandparents, Dad’s parents, that are no longer here as well, and all the joyful times spent in grandma’s kitchen for family events. Then there’s the Sunday dinners at Dad’s house when he lived down the 12th with our stepmom, Rose, also no longer with us. Today, I am poignantly aware of their absence in my life. It is true that the grief will soften with time but it will never truly go away. It is a hallowed burden that slowly grows lighter as you learn to carry it with you for the rest of your days.

Jennifer’s birthday today is overshadowed by the death of my dad, but I like to think that the two of them are celebrating it together in the afterlife. I am missing them both very much. Maybe if I decide to go out today, I’ll stop by the bakery for a cake and by the liquor store for a nip of something, and tonight at my house, I will eat cake and raise a glass to toast my sister and my dad – always loved and never forgotten.

Sometimes you never know the true value of someone, until they become a memory.


These were Jennifer’s favourite photos of her and Dad from our childhood.